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  • Sharing My Real Challenging Story: Complete Recovery after Debilitating Stroke & Brain Surgery
Rehabilitation 1 - Life Deviation

The patient absolutely needs rest.

by Habaram 2023. 12. 23.

 

The patient has his/her own path.

Even if he/she looks good, he/she is not normal yet.


What would happen

if you were to ride on a bumpy mountain path in a good wheelchair?

Someone pushing it from behind

and even the person sitting in the wheelchair will get tired.

 

There will be nothing good in this situation.


 


I remember a conversation between carers at the hospital.

I didn't want to shower that much back then.

My carer forced me to shower probably to fulfill her role.

As a result, however, I became more shower averse after that.


After I was forced to shower by my carer,

on that night, I had to suffer from cold

and had trouble sleeping due to insomnia.

 

My physical strength worsened too

and my mind and body were literally in a state of weakness.


The biggest problem was that I was losing motivation to live

as I felt so difficult to even do such a basic stuff.

 

I felt like everything was pointless.

 

I couldn't or didn't want to go to physical therapy that I worked so hard for.



Two elder carers who have seen my situation gave an advice to my carer.

I was amazed that there really was no such thing as experience.

 

“When a patient refuses, there is a reason,

so it is better to listen to the patient first.

Don't force her too much.

You both will have a hard time if you continue that way.”

 

That was so correct.


The carer is someone who met me for the first time by chance.

Of course she didn't know that I was a person

who was very sensitive to cold.

 

She might think I was joking when I said I was cold.

I wondered how much more I could expect from the hospital.

So, the situation was that it was best to endure.


Plus, I had a tube stuck in my throat.

I couldn't explain what my issue was

because there was no voice at all.

 

There was no way there to communicate with her.

It might have seemed like I was faking it.


Of course, after we got used to each other,

we could communicate just by looking at each other.

 

This may be a situation that even parents may not know.


I think the carer forced me because she wanted me to keep clean.

In fact, washing a large adult won’t be easy.

 

I am grateful that she tried to wash me away like that.



Yesterday I felt very good.

I wake up and wrote a blog post.

One way or another, it was really good up to that point.


Suddenly, I was asked to go for dinner.

I got in the car and was driven around for a while.

Then, I was in a terrible state. I felt so tired and down.

I felt like a patient again.


So, based on my experience as a patient,

I have something to say to the carers who protect patients.

 

Carers are those we cannot express our gratitude enough

however

 

Please do not drive the patient around in your car.

Doing so will do more harm than good.


The patients endure

because they’re afraid of giving you bad impressions.


 


They are sensitive to worry about how you feel.

 

so

It's better to leave the patient alone.

That's what does it best.


There are times

when it feels burdensome to worry about even one more thing.

There are times when you feel sad.


It's better to take your time and be patient.

 

When we, patients, get well again,

we'll go back to being the person we used to be.


Right now, for a moment,

the patients are in the state of neither you nor I.

 

However, in situations where the body is improving,

stable rest is the best medicine.

 

 

The original script of the above article was from

https://blog.naver.com/petitecole/223274360156